News & Information

In October 2020 the first International Ewing’s sarcoma Symposium was held virtually due to the Covid pandemic. It was hosted by our good friends the Bone Cancer Research Trust (‘BCRT’) and Professor Sue Burchill from the University of Leeds; the symposium was such a success that the above follow up event was held in a year later. This year’s virtual conference brought together over 100 researchers from across the world and attendees enjoyed fifteen presentations; some of which were followed...

Fred Collinson’s teammates of the U15s Gloucester cricket team are holding a 24-hour Net Session to raise money for the Ewing's Sarcoma Research Trust at Wycliffe College. During the 24 hours, we aim to beat Alastair Cook's record of scoring 12,472 test match runs: each ball hit = 1 run. We’re doing it because Fred Collinson, our opening bowler, was diagnosed with Ewing Sarcoma in September 2020. Over the last nine months, Fred has undergone 15 rounds of intense chemotherapy...

We asked Dr Abigail Evans, Scientific Project Manager of the EEC what this funding had enabled the EEC to achieve and here is her response: “The EEC aims to improve survival and outcomes for patients with Ewing sarcoma. Because it is a rare disease, it is essential that people in the field work together to share knowledge, experience, resources, and data, and for patients to be recruited to international trials. There is no funding from national organisations to support this so...

The London Marathon is up and running again and we have been blessed by the wonderful Lily Goulding who ran to raise funds for Ewing research. I stood along Birdcage Walk to cheer Lily and all of the other runners on to the finishing line which was only 1km away. Lily finished in just over 4 hours, what a run! And what a fantastic amount she raised. So far she has received donations with Gift Aid of, £2,665 which is way more...

Ewing sarcoma is a bone cancer that can be diagnosed at any age but is most commonly seen in teenagers. Current survival rates are highest in younger children and progressively fall with age, with potentially serious side-effects commonly associated with treatment. Routine tests do not accurately predict who will be cured or will experience increased side effects, which may be related to differences in drug exposures observed in different patient age groups. The current study will investigate what happens to...

For around one in three patients diagnosed with Ewing sarcoma in just one part of the body current treatments are ineffective. The new research, funded by the Bone Cancer Research Trust and the Ewing’s Sarcoma Research Trust, opens up the possibility of offering these patients additional treatment that could increase their chance of survival. The research team from the University of Leeds were able to identify the particular cancer cells – known as cancer stem-like cells – in Ewing sarcoma that...