News & Information

News & Information


Ewing’s Sarcoma - Patients Story - graphic

Ruth’s story

Ruth was diagnosed in 1992 at the age of 15. At the age of 15 I began to get terrible pains in my leg. The pain was intermittent but when it did come it was excruciating and there was nothing, I could do to relieve it. This pain came and went sometimes lasting weeks at a time. At the base of my spine, it felt like there was a massive toothache, a deep consistent stabbing pain. A duller tighter pain with...

Ewing’s Sarcoma - Patients Story - graphic

Mark’s Story

Mark was diagnosed with Ewing’s Sarcoma in his left femur in September 2010, and tragically passed away in April 2012. Mark was first diagnosed with Ewing’s Sarcoma on 29th September 2010 aged 10. His symptoms began only 8 weeks earlier when he complained of minor aches and pains in his left thigh. We dismissed these as growing pains, or a pulled muscle, as they weren’t too bad at that point. Mark was very sporty and active. He played football and swam...

Ewing’s Sarcoma - Patients Story - graphic

Rebecca’s Story

Rebecca was diagnosed with Ewing’s Sarcoma in her right femur in September 2011, aged 23. I first started noticing pain in my right thigh on New Year’s Day, 2011. I was 22 at the time. I put it down to too much dancing the night before and ignored it. It went away, but then came back a few weeks later. It would last for a week or so and was so bad it often kept me awake at night. People always...

Ewing’s Sarcoma - Patients Story - graphic

Matt’s story

I was diagnosed with Ewing’s Sarcoma in November 2007. I was an extremely active 16-year-old, who assumed an innocuous tackle in a football match was causing the pain and swelling in my right heel. But after two months of investigations, I was told I had a rare form of bone cancer: Ewing’s Sarcoma. The next few weeks were a whirlwind of activity. I was diagnosed on a Friday, and on the Monday, I was expected at University College London Hospital...

Ewing’s Sarcoma - Patients Story - graphic

Partnership with the GOSH Charity and Sparks National Funding Call

"The Ewing's Sarcoma Research Trust is delighted to be partnering with the GOSH Charity and Sparks National Funding Call 2020/2021. Early diagnosis of any cancer increases the chances of survival, but once diagnosed effective treatments are essential if we are to improve the outcomes for this rare cancer affecting the younger generation. We must build on recent progress to give Ewing's patients the same hope that every cancer patient can expect, and we hope that this research call will engender greater...