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We focus on energies on fundraising, raising awareness and helping our fundraisers and their supporters.
MISSION STATEMENT
We see a world without Ewing’s sarcoma threatening the lives of our children and teenagers.
“We aim to fund desperately needed research into the treatment of Ewing’s Sarcoma, offering the promise of a cure for this aggressive, but treatable form of cancer.
In doing this, we hope that less invasive treatments can be developed that will not only improve survival rates that are being achieved, but also cause less side effects, by working to support the best specialists in the world.”
WHAT CAN I DO?
How to make the most of your donation
Gift Aid
Some UK taxpayers can boost their donation if they pledge Gift Aid when making it. This means the government will add 25p for every £1 pound you donate!
Making a pledge in your Will
Leaving a gift in your Will can be a wonderful way to help future generations.
Shop & Donate
You can support Ewing's Sarcoma Research Trust when you shop at smile.amazon.co.uk at no cost to you.
PATIENT STORIES
Here are the stories of just some people who’ve battled Ewing’s.
About 80 people are diagnosed with Ewing’s Sarcoma each and every year in the UK. For anyone diagnosed with this form of cancer, treatment takes a long time, involving chemotherapy as well as surgery, radiotherapy or a combination of all three.
Iain’s story
Iain’s story
Iain was diagnosed with Ewing’s Sarcoma in November 2007, at the age of 11. Until September 2007 I was active and did lots of sport, I especially enjoyed being a goalkeeper. For about a year I had a sore right thigh – after a couple of days the pain always went away and then would come back a few months later. The doctors thought it was because of my flat feet and then because I injured my right ankle that...
David’s Story
David’s Story
While Ewing’s sarcoma is a disease commonly associated with young adults and adolescents, that isn’t always the case. John Culshaw tells of his connection to Ewing’s, through his brother, David. Last year (2014) we lost my younger brother David to Ewing’s. He was 60 years of age. Ewing’s sarcoma is classed as a children’s disease and is extremely aggressive. The number of adults that contract the disease is in the order of 1 in 1,000,000 and unfortunately David was the one...
So you want to help out?
FIND OUT ALL YOU NEED TO KNOW ABOUT FUNDRAISING AND CONTRIBUTING
Some useful advice and tips for your own events.
What does your help really mean?
We are so thankful to all of our wonderful fundraisers. Advances in the treatment of Ewing’s Sarcoma only come from many days of research. Here two of our researchers have messages for you, because the money you donate enables them to identify new treatments for Ewing’s patients.
We’re fortunate to be beneficiaries of ESRT fundraising and I’d like to thank each and every one of you for your support. With the money that you have raised, we’ve been able to develop patient derived models. We’re now using those models to identify new treatments that could be used by doctors in the future to help improve cure rates for patients.
My project would definitely not have been possible without support from the Ewing’s Sarcoma Research Trust. It is so important that there is a charity that is solely focussed on finding new treatment options for Ewing’ Sarcoma patients. I would like to take this opportunity to thank all of the supporters of the Ewing’s Sarcoma Research Trust for their hard work and fundraising efforts.
News
Charity, Research and more...
Advances in Ewing’s sarcoma Research
Advances in Ewing’s sarcoma Research
In October 2020 the first International Ewing’s sarcoma Symposium was held virtually due to the Covid pandemic. It was hosted by our good friends the Bone Cancer Research Trust (‘BCRT’) and Professor Sue Burchill from the University of Leeds; the symposium was such a success that the above follow up event was held in a year later. This year’s virtual conference brought together over 100 researchers from across the world and attendees enjoyed fifteen presentations; some of which were followed...
24 hours batting for Fred. Saturday 23rd and Sunday 24th October
24 hours batting for Fred. Saturday 23rd and Sunday 24th October
Fred Collinson’s teammates of the U15s Gloucester cricket team are holding a 24-hour Net Session to raise money for the Ewing's Sarcoma Research Trust at Wycliffe College. During the 24 hours, we aim to beat Alastair Cook's record of scoring 12,472 test match runs: each ball hit = 1 run. We’re doing it because Fred Collinson, our opening bowler, was diagnosed with Ewing Sarcoma in September 2020. Over the last nine months, Fred has undergone 15 rounds of intense chemotherapy...
We step in to financially support the EURO EWING Consortium (EEC) when their EU grant ceased following BREXIT
We step in to financially support the EURO EWING Consortium (EEC) when their EU grant ceased following BREXIT
We asked Dr Abigail Evans, Scientific Project Manager of the EEC what this funding had enabled the EEC to achieve and here is her response: “The EEC aims to improve survival and outcomes for patients with Ewing sarcoma. Because it is a rare disease, it is essential that people in the field work together to share knowledge, experience, resources, and data, and for patients to be recruited to international trials. There is no funding from national organisations to support this so...
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