Ewing’s Sarcoma Research Trust - fundraising

TOGETHER, WE CAN WORK TOWARDS A WORLD WITHOUT EWING'S SARCOMA

We support families, we raise awareness, we drive research and we fight cancer.

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Ewing’s Sarcoma Research Trust - fundraising

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Ewing’s Sarcoma Research Trust - fundraising

We focus on energies on fundraising, raising awareness and helping our fundraisers and their supporters.

Ewing’s Sarcoma Research - research

We also aim to fund reliable, relevant
research into Ewing’s sarcoma.

MISSION STATEMENT

We see a world without Ewing’s sarcoma threatening the lives of our children and teenagers.

“We aim to fund desperately needed research into the treatment of Ewing’s Sarcoma, offering the promise of a cure for this aggressive, but treatable form of cancer.

In doing this, we hope that less invasive treatments can be developed that will not only improve survival rates that are being achieved, but also cause less side effects, by working to support the best specialists in the world.”

WHAT CAN I DO?

How to make the most of your donation


Gift Aid

Some UK taxpayers can boost their donation if they pledge Gift Aid when making it. This means the government will add 25p for every £1 pound you donate!

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Making a pledge in your Will

Leaving a gift in your Will can be a wonderful way to help future generations.

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More Ways to Give

We hope that you’ll find a good way to donate to our research work.

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PATIENT STORIES

Here are the stories of just some people who’ve battled Ewing’s.

About 80 people are diagnosed with Ewing’s Sarcoma each and every year in the UK. For anyone diagnosed with this form of cancer, treatment takes a long time, involving chemotherapy as well as surgery, radiotherapy or a combination of all three.

Ewing’s Sarcoma - Patients Story - graphic

David’s Story

While Ewing’s sarcoma is a disease commonly associated with young adults and adolescents, that isn’t always the case. John Culshaw tells of his connection to Ewing’s, through his brother, David. Last year (2014) we lost my younger brother David to Ewing’s. He was 60 years of age. Ewing’s sarcoma is classed as a children’s disease and is extremely aggressive. The number of adults that contract the disease is in the order of 1 in 1,000,000 and unfortunately David was the one in...

Ewing’s Sarcoma - Patients Story - graphic

Rebecca’s Story

Rebecca was diagnosed with Ewing’s Sarcoma in her right femur in September 2011, aged 23. I first started noticing pain in my right thigh on New Year’s Day, 2011. I was 22 at the time. I put it down to too much dancing the night before and ignored it. It went away, but then came back a few weeks later. It would last for a week or so and was so bad it often kept me awake at night. People always asked...

So you want to help out?

FIND OUT ALL YOU NEED TO KNOW ABOUT FUNDRAISING AND CONTRIBUTING

Some useful advice and tips for your own events.

What does your help really mean?

We are so thankful to all of our wonderful fundraisers. Advances in the treatment of Ewing’s Sarcoma only come from many days of research. Here two of our researchers have messages for you, because the money you donate enables them to identify new treatments for Ewing’s patients.


News

Charity, Research and more...

Ewing’s Sarcoma Researcher – Professor Sue Burchill

Metastatic drug-resistance. Update on the work of Professor Sue Burchill and her team

Metastatic drug-resistant disease continues to pose the most difficult challenge for the successful treatment of many young people with Ewing sarcoma. Currently doctors have no tools to separate those patients that will be cured from those that have poor outcomes, nor any targeted treatment to eradicate the cells responsible for progression and relapse. With funding from ESRT and BCRT the Children’s Cancer Research Group (CCRG) at the University of Leeds, headed by Prof Sue Burchill, have isolated and characterised the sub-population...

Optimising the Treatment of Teenagers and Young Adults with Ewing Sarcoma through an Increased Understanding of Clinical Pharmacology and Toxicity Biomarkers

The currently funded BCRT/ESRT study involves investigating the fate of drugs administered to Ewing sarcoma patients following administration, how they are broken down and cleared from the body and what factors are important in determining response and toxicity. This will provide information on how much drug individual patients should be given to ensure they receive the appropriate dose that is effective without leading to excessive toxicity. Through an improved understanding of the clinical pharmacology of these drugs we are looking...

Ewing’s Sarcoma - Patients Story - graphic

Partnership with the GOSH Charity and Sparks National Funding Call

"The Ewing's Sarcoma Research Trust is delighted to be partnering with the GOSH Charity and Sparks National Funding Call 2020/2021. Early diagnosis of any cancer increases the chances of survival, but once diagnosed effective treatments are essential if we are to improve the outcomes for this rare cancer affecting the younger generation. We must build on recent progress to give Ewing's patients the same hope that every cancer patient can expect, and we hope that this research call will engender greater interest...

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