We see a world without Ewing’s sarcoma threatening the lives of our children and teenagers.
“We aim to fund desperately needed research into the treatment of Ewing’s Sarcoma, offering the promise of a cure for this aggressive, but treatable form of cancer.
In doing this, we hope that less invasive treatments can be developed that will not only improve survival rates that are being achieved, but also cause less side effects, by working to support the best specialists in the world.”
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Here are the stories of just some people who’ve battled Ewing’s.
About 80 people are diagnosed with Ewing’s Sarcoma each and every year in the UK. For anyone diagnosed with this form of cancer, treatment takes a long time, involving chemotherapy as well as surgery, radiotherapy or a combination of all three.
Ruth was diagnosed in 1992 at the age of 15. At the age of 15 I began to get terrible pains in my leg. The pain was intermittent but when it did come it was excruciating and there was nothing, I could do to relieve it. This pain came and went sometimes lasting weeks at a time. At the base of my spine, it felt like there was a massive toothache, a deep consistent stabbing pain. A duller tighter pain with...
Iain was diagnosed with Ewing’s Sarcoma in November 2007, at the age of 11. Until September 2007 I was active and did lots of sport, I especially enjoyed being a goalkeeper. For about a year I had a sore right thigh – after a couple of days the pain always went away and then would come back a few months later. The doctors thought it was because of my flat feet and then because I injured my right ankle that...
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Charity, Research and more...
Advances in Ewing’s sarcoma ResearchColin Short
Advances in Ewing’s sarcoma Research
In October 2020 the first International Ewing’s sarcoma Symposium was held virtually due to the Covid pandemic. It was hosted by our good friends the Bone Cancer Research Trust (‘BCRT’) and Professor Sue Burchill from the University of Leeds; the symposium was such a success that the above follow up event was held in a year later. This year’s virtual conference brought together over 100 researchers from across the world and attendees enjoyed fifteen presentations; some of which were followed...
24 hours batting for Fred. Saturday 23rd and Sunday 24th OctoberColin Short
24 hours batting for Fred. Saturday 23rd and Sunday 24th October
Fred Collinson’s teammates of the U15s Gloucester cricket team are holding a 24-hour Net Session to raise money for the Ewing's Sarcoma Research Trust at Wycliffe College. During the 24 hours, we aim to beat Alastair Cook's record of scoring 12,472 test match runs: each ball hit = 1 run. We’re doing it because Fred Collinson, our opening bowler, was diagnosed with Ewing Sarcoma in September 2020. Over the last nine months, Fred has undergone 15 rounds of intense chemotherapy...
We step in to financially support the EURO EWING Consortium (EEC) when their EU grant ceased following BREXITColin Short
We step in to financially support the EURO EWING Consortium (EEC) when their EU grant ceased following BREXIT
We asked Dr Abigail Evans, Scientific Project Manager of the EEC what this funding had enabled the EEC to achieve and here is her response: “The EEC aims to improve survival and outcomes for patients with Ewing sarcoma. Because it is a rare disease, it is essential that people in the field work together to share knowledge, experience, resources, and data, and for patients to be recruited to international trials. There is no funding from national organisations to support this so...
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