We see a world without Ewing’s sarcoma threatening the lives of our children and teenagers.
“We aim to fund desperately needed research into the treatment of Ewing’s Sarcoma, offering the promise of a cure for this aggressive, but treatable form of cancer.
In doing this, we hope that less invasive treatments can be developed that will not only improve survival rates that are being achieved, but also cause less side effects, by working to support the best specialists in the world.”
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Here are the stories of just some people who’ve battled Ewing’s.
About 80 people are diagnosed with Ewing’s Sarcoma each and every year in the UK. For anyone diagnosed with this form of cancer, treatment takes a long time, involving chemotherapy as well as surgery, radiotherapy or a combination of all three.
Charlotte was diagnosed in 2009, aged 4. In September 2009, 4-year-old Charlotte came home and complained of a sore ankle. We had just purchased a trampoline for her birthday and thought it was due to a twisted ankle, but it persisted and awoke her in the night. After visiting the GP, we were told it was probably an infection in the joint with an appointment for over a month’s time to see a Paediatrician at Warrington Hospital. Call it mother’s instinct, but...
While Ewing’s sarcoma is a disease commonly associated with young adults and adolescents, that isn’t always the case. John Culshaw tells of his connection to Ewing’s, through his brother, David. Last year (2014) we lost my younger brother David to Ewing’s. He was 60 years of age. Ewing’s sarcoma is classed as a children’s disease and is extremely aggressive. The number of adults that contract the disease is in the order of 1 in 1,000,000 and unfortunately David was the one in...
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Charity, Research and more...
EURO EWING Consortium May NewsletterColin Short
EURO EWING Consortium May Newsletter
Along with the BCRT, we are proud to support the work of the EURO EWING Consortium (EEC). The EEC aims to improve survival and outcomes for patients with Ewing sarcoma. As a rare disease, it is essential that people in the field work together to share knowledge, experience, resources, and data, and for patients to be recruited to international trials. There is no funding from national organisations to support this so financial support from the Ewing’s Sarcoma Research Trust has been essential...
Billy Mumby Memorial Football MatchColin Short
Billy Mumby Memorial Football Match
Matt Curtis and the other friends of Billy Mumby are organising a Charity Football match in Billy's memory. Billy passed away from Ewing’s Sarcoma at just 21 years old. Billy was a football fanatic who played for 2 clubs throughout his life and his friends can think of no better way of remembering him than through a football match made up of his friends and former teammates. The event will take place on 9th July at Belton Recreation Ground and...
Optimising the Treatment of Teenagers and Young Adults with Ewing Sarcoma through an Increased Understanding of Clinical Pharmacology and Toxicity BiomarkersColin Short
Optimising the Treatment of Teenagers and Young Adults with Ewing Sarcoma through an Increased Understanding of Clinical Pharmacology and Toxicity Biomarkers
Ewing sarcoma is a bone cancer that can be diagnosed at any age but is most commonly seen in teenagers. Current survival rates are highest in younger children and progressively fall with age, with potentially serious side-effects commonly associated with treatment. Routine tests do not accurately predict who will be cured or will experience increased side effects, which may be related to differences in drug exposures observed in different patient age groups. The current study will investigate what happens to the...
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