Support for Patients and Families
We at the Ewing’s Sarcoma Research Trust are dedicated to funding research and, as a small charity are not able to provide comprehensive support services. However, some of our trustees are either patients or the relatives of patients and are willing to talk with anyone who is recently diagnosed with Ewing’s, or their family members.
There are several charities who do provide a variety of support services throughout the UK. We hope that either our personal experiences, or the charities we have listed here you will be able to help you come to terms with a diagnosis and treatment.
Bone Cancer Research Trust
The Bone Cancer Research Trust was formed by a group of people who had either suffered from or had a family member who suffered from, bone cancer.
To find out more about the BCRT, and to contact them directly, please click here >>
Macmillan Cancer Support
Macmillan is often the first name people think of when it comes to cancer charities that support all cancer sufferers. They offer a variety of services, from providing information through to emotional, social and psychological support. Macmillan also have a team of specialist nurses.
To find out more about Macmillan Cancer Support, please click here >>
Teenage Cancer Trust
The Teenage Cancer Trust focus on improving the facilities available to teenagers in hospital. Often, teenagers struggle with being very alone on either an adult or children’s ward, when their needs are very different from their fellow patients. TCT have funded the construction of specialist units for teenagers in different parts of the country.
They also have a support network on their website, mainly for patients, but they also have a family support network and education services.
To visit their website, please click here >>
CLIC Sargent is one of the leading charities for children and young adults with cancer. They have social workers, youth workers, clinical nurse specialists as well as many other services to help patients and families throughout treatment.
One of their practical solutions is a “home from home”. These are located near treatment centres and give families the opportunity to spend time together during periods of treatment.
To find out more about CLIC and what they can provide, please click here >>