News Stories & Funding Information

The charity is so grateful to all our fundraisers who have all been affected by Ewing’s sarcoma in some way. Sadly some have lost a family member, others a classmate or a dear friend, but others are motivated purely by the courage of someone still fighting the disease.

Below we list some of our wonderful fundraisers and apologise for not being able to mention everyone:


  • Reed Smith held a Dress–Down Day to raise funds for us.
  • John Culshaw held a fundraising Golf Day at the Runcorn Golf Club with an evening auction in memory of his brother, David.
  • St James Senior Girls School have been undertaking fundraising events for the ESRT. Thank you all.
  • Tunbridge Wells Boys Grammar School, Head Boy’s fund has raised £1,500.
  • Jamie Weller and Tunbridge Wells Grammar School for Boys
  • Katy Strutt and her fellow pupils at the Strathearn Grammar School for Girls raised £116.51 in memory of her big sister Sophie.
  • Students of St Thomas More Catholic Academy raised £1,640.57 in memory of fellow student Aaron Sharpe.
  • Ann Alsop, her family and friends raised £2,000 in her memory her daughter Chelsea Alsop who lost her life aged 17.
  • Donations totalling £305 were made in lieu of floral tributes in memory of Luke Perry.
  • Staff and pupils at Dalry Primary School raised £133.26 at their Christmas Pantomime in memory of Mark Hughes.
  • Helen Kinsella lost her son Antony to Ewing’s sarcoma and with her colleagues at the Abellio Greater Anglia Academy raised £260.



  • Grandmother Dee Rollinson from Cheshire rode 365 miles from 7th to 11th May raising nearly £5,000 for us, fantastic!
  • The Aylesbury Vale Academy held a ‘Sensitive Performance’ on 1st May 2014 to raise funds for us.
  • The ESRT Summer Ball made a profit of £517.
  • On 11th December 2014 two of our trustees, Matt and Elaine opened the new Body Shop store in Tunbridge Wells. We would like to thank everyone at the branch for all their support.
  • The ESRT teams at the 2014 Dragon Boat Festival raised over £8,000. We would like to thank all the rowers, the team who staffed the stall, our friends from the Body Shop and all our friends and supports who came along.
  • Brian Stott donated £2,200 from a sky dive, which he did in memory of Natalie Roberts.
  • Clair Wistow donated £11,700! Thank you Clair.
  • The team at the John Lewis branch in Nottingham raised £1,100 in memory of Cathy O’Neill.



  • In February we were sorry to hear of the passing away of Tim Woollcott, whose family asked for a retiring collection to be held for ESRT in his memory. Over the past couple of months we have received over £1,000 in Tim’s memory by his family and friends.
  • Yorkshire Building Society also made a further donation of £100.
  • Also in April, Garnoc Sharks Swimming Club, which Mark Hughes joined as a seven year old, donated £520 raised at their annual gala.
  • A further £520 was donated from a collection at the funeral of prominent Scottish politician James Jennings JP OBE, who was related to Mark Hughes.
  • Rivington Primary School donated £245, after being inspired by the story of Katie Dodd, a four-year old Ewing’s Sarcoma patient from Bolton, who was given the opportunity of life-saving treatment in the USA this year. An ex-pupil has also suffered from Ewing’s. As Katie loves “Barbie and Ken” they held a cake sale, guess the name of the teddy, and asked the pupils to dress up as either Barbie or Ken!
  • The 1st Acton Brownie Pack raised £270, after the leader’s great niece was diagnosed with Ewing’s, by putting on a play and show before Christmas, with stalls and a raffle.
  • Ashurst LLP kindly chose ESRT as their charity of the year for their annual Trainee Ball in London, and through a raffle raised over £1,860 for ESRT, getting us off to 2013 in a great way! This was supplemented by a very kind donation from a partner within the firm of £750.
  • Billy Gilmour, Kevin O’Neill and Jess Barrow raised a whopping £694 for ESRT.
  • Sherbourne Police Station made a donation of £100 in memory of Vernon Norris.
  • Further fundraising efforts by the family and friends of Mark Hughes raised the fantastic amount of £2,220.


  • Scottish Widows also held an event late in 2012, raising £350.
  • Yorkshire Building Society completed a sponsored Walk, Run and Cycle around Millport, raising £697 for ESRT.
  • We received a kind donation from St Palladius Primary School, North Ayrshire, of £150.
  • Another donation was made in memory of Vernon Norris, of £175.
  • University of Leicester Law Society raised £202 through a more unusual fundraising method, donating £1 of every ticket sold to a “Shot Showdown” to ESRT.
  • This November 2012 we were saddened to hear of the passing of Vernon Craig Norris earlier this month, having received an e-mail from his parents-in-law, Sue and Peter Chew. Vernon unfortunately passed away after a second fight with Ewing’s Sarcoma, and it was his wife Phillippa’s wish that donations were made in his memory. Described as a very clever, knowledgeable and brave person, Vernon will be sorely missed by those he leaves behind. Phillippa, Peter, Sue and Vernon’s parents Mel and Patsy have asked us to thank everyone who has contributed such kind donations.
  • Blemain Finance also raised £451 for ESRT this month, through a sponsored dress down day.
  • Over £1,800.00 was raised at the Ashurst Law Firm Ball.
  • Billy and Harvey Clifford (and Dad) completed a sponsored run for Ewing’s Sarcoma Research Trust, once again in memory of Mark Hughes. Billy and dad finished the 10 and a quarter mile run in 1 hour 40 minutes, whilst Mum and Harvey cycled round behind them – encouraging the two runners in wet and windy weather! They raised a fantastic £565!
  • Alison Hughes also hosted a charity football match in memory of her brother Mark, raising a further £1,400.
  • Dragon Boat Racing came back round again in September 2012 and our teams raised a fantastic amount of about £11,500!
  • Coutts Bank made a generous donation of £250.
  • NHS County Durham made a kind donation in August 2012.
  • North Ayrshire Amateur Swimming Club completed a sponsored swim in July, as the swimming club of Mark Hughes, and they raised an amazing £1,700!
  • Steve Gill completed the Three Peaks Challenge in June, raising a fantastic £350!
  • Pavneet Singh completed her first skydive and she raised about £500 for ESRT.
  • Morag Love and Catriona Campbell raised around £600 for us.
  • Pauline and Jim Hughes became involved with ESRT in May 2012, and, through a combination of donations online and in the aftermath of their son Mark’s death, donated £5,000.
  • Matt Parsons completed a sponsored 24-hour row for ESRT in February of this year, at Nizels Health Club.
  • Daren Wilson also completed the Brighton Marathon and London Marathon on consecutive weekends! He finished both with times around the 4 hour mark, raising £1,400 in the process!
  • Victoria Elmer completed a most extreme challenge when she completed an Ironman Triathlon. She swam 2.5km, cycled 112km and then ran 26 miles! She finished in a great time and raised £576.
  • Mariselle Harrison, Lizzie Harrison and Laura Whiteley rounded off a trio of extreme challenges, by completing the YOMP Fell Run, raising another £430.
  • Lucy Russell completed a sponsored cycle for ESRT in April.
  • Callum McDonald also raised money for us in April.
  • Jarvis Investment made a very generous donation, from some fundraising in the office, including a dress down day.
  • University of Leicester Boat Club undertook a sponsored 24-hour row, where they rowed the equivalent of Leicester to Geneva, and raised in the region of £1,500. It was a long night, and hard work, but was great fun and raised a great amount of money.
  • Ben Wilson, Dan Devitt and Sean Beard also completed the Tunbridge Wells half marathon for ESRT! Our thanks go to all three of you.
  • Newport Girls High School Academy Trust raised £427 for us through a number of activities in the run up to Christmas.
  • Edenbridge School also made a very generous donation in January 2012.



  • Berry Gardens, from Five Oak Green, Kent, completed a Sponsored Jaffa Cake eating contest to raise more money for us.
  • The 2011 Dragon Boat Festival helped us raise £13,000 for research.  We would like to say a huge thank you to all the volunteers, participants, and sponsors of our launch event.
  • Berry Gardens farm donated £300.
  • Oval Insurance kindly donated £200
  • Thanks to Tonbridge Angels who allowed us to have a bucket collection at one of their matches: £245 was raised.
  • Following the Dragon Boat race and an event at RBS the banks have donated £250 [RBS] and £500 [HSBC] to the ESRT.
  • HSBC’s Sports Association made a donation of £750, which they raised at their Summer Ball. This was hugely important to us as it allowed us to set up for our first organised fundraising event – the Dragon Boat Festival 2011.