Ewing’s Information

We aim to provide information about Ewing’s sarcoma so you can find reliable information about the condition. The internet is a vast resource, and we share the worries of other charities that patients and families find unreliable and misleading information that has been posted by unknown sources.

We’ve therefore compiled information from personal experiences of treatment, and scientifically reliable sources to ensure you find reliable information about:

These are all contained on separate pages, because some people won’t want to see some information, and others might.

It’s really important patients and families remember statistics are not specific to patients, and that each and every Ewing’s Sarcoma patient is unique, with their own individual circumstances.

Statistics only ever tell half the story.

To find out a little bit more about how the  research process works, click here.

The Information Standard

Since 2013, ESRT has been a member of the Information Standard certification – run by NHS England. By committing to the certification, ESRT demonstrates its commitment to producing trustworthy health care information, and the robustness of its information production processes.

To find out more about what the Information Standard means, visit the NHS England website.

ESRT commits to producing high-quality, reliable medical information. We would welcome feedback on the information that we produce, so if you wish to let us have your views please send your comments to the charity at ewingssarcoma.researchtrust@gmail.com.